Moving Forward

Lane and I were able to go together today to take Noah for his DEXA scan. When we arrived we were greeted by Donota (PT) and Abby. Donota took Noah for a minute to check on his head control which she said was great. We then took Noah and laid him on a small table where the DEXA scan awaited us. He immediately began to cry. He sure does have a way of knowing when some sort of medical procedure is going on.

After about 30 minutes of holding him in place while they did the scan we were able to see the results. Of course, as expected it was not good. His bone density is very low. This is a result of his poor nutrition and not bearing any weight. Abby said that his nutrition is even more critical than we originally thought.

Abby did tell us that Noah's pediatrician called today and got all of their records and Dr. Swoboda's preliminary report of recommendations. This is great news....this means we will finally be getting the ball rolling as far as getting the equipment Noah needs. While Noah is in the hospital they will be trying to do a sleep study so we can get him evaluated to get a bi-pap. Before he is discharged we will also have his cough assist.

We did find out that Noah's feeding tube will mainly be used for continuous overnight feedings. So if he eats good during the day great....if not then its not a big deal because he will get his calories at night. This was some good news.....less stress.

Within the next few weeks we will be getting Noah evaluated for a stander and his manual wheelchair. We are anxious because it will finally give him a form of mobility....

So after all was said and done, we got some good news and some not so good. We are trying to stay positive cause we have a tough little guy on our hands. Go Noah!!!